Save the date: 13 – 19 September 2020

Global Mitochondrial Disease
Awareness Week


Around the world Global Mitochondrial Disease Awareness Week is marked with educational, fundraising and advocacy efforts designed to raise awareness about mitochondrial disease (mito).


Global Mitochondrial Disease Awareness Week 2019 Events

– THANK YOU! –

 

Hope for Hank – Golfing for a Cure!

Friday 13 September 2019 Wooded View Golf Course Clarksville, Indiana USA

Golf Scramble with benefit following at park next to golf course. Catered meal, silent auction, mitochondrial awareness table with slideshow. Goal to raise $20,000 or more for research.

 

Light Up for Mito

Saturday 14 September 2019 | Worldwide  (See the locations)

Light Up for Mito is a global campaign whereby landmarks around the world will be illuminated in green to raise awareness about mito.

 

Energy For Life Walkathon

Saturday 14 September 2019 | Kansas City / Detroit / Western New York  / Southern Wisconsin, The USA 

The United Mitochondrial Disease Foundation (UMDF) and their supporters host events during the week. Check more out here.

 

Take a Stand Against Mito

Sunday 15 September 2019 | The UK

Let’s set up a Lily awareness stand to raise awareness about mito in your neighbourhood. Learn more here.

 

Mito Talk

Sunday 15 September 2019 | Calgary, Canada

Join us for an interactive discussion on the journey that mitochondrial disease is, current research and what the future looks like in terms of innovation and the development of therapies and treatment. Learn more here.

 

Stay in Bed Day 

Sunday 15 September 2019 | Australia

Join us to stay in bed to raise awareness and much-needed funds for cure.Learn more here.

 

The Virtual Run for Mito

Sunday 15 – Thursday 22 September 2019 | New Zealand

You can run/walk either 5km / 10km /21.1km or 42.2km during the Awareness Week, anywhere around the world. It can be done in one single run or you can accumulate this distance over the period of that week. Learn more here.

 

NSW Parliament House Stall 

Tuesday 17 September 2019 | Sydney, Australia

Mito Foundation is hosting a stall outside NSW Parliament House in Sydney (8:30am -) to raise awareness among politicians and invite them to wear a green ribbon to show their support.

 

Conference “Mitochondrial diseases. Let’s get to know them better!”

Wednesday 18 September 2019 | Pisa, Italy

 Organised by Mitocon Onlus, in collaboration with Prof. Michelangelo Mancuso and Prof. Gabriele Siciliano of the Neurological Clinic of Pisa, to sensitize citizenship and the media on the impact that these diseases have on the lives of people and their loved ones. Learn more : Mitocon

 

Mito-day 

Wednesday 18 September 2019 | Stockholm, Sweden

Participate in a day of learning organised by NeuroVive and Chiesi farmaceutici. Meet with experts, clinicians, patients and speakers to better understand mitochondrial disease and how we can build awareness. Learn more here.

 

“Mitochondria in Game” 

Friday 20 September 2019 |Czechia, Czech Republic

Join us and discover mysteries of mitochondrial disorders. Register your team ! (Recommended team size: 2-4 adults plus children). Learn more hereMitochondria in Game

 

Mitochondria Symposium “From Bench to Bedside”

Friday 20 September 2019 | Nijmegen, The Netherlands

The RCMM is organising this symposium for all scientific researchers that are working or are interested in this research field. Learn more here.

 

Meeting at The IRCCS Foundation

Friday 20 September 2019 | Milan, Italy

The physicians and researchers will be available to speak to patients and families, reply to their questions and promote knowledge and awareness on mitochondrial diseases.  The event is organised by the IRCCS Foundation Neurological Institute “C.Besta”. Learn more: IRCCS 

 

Meeting “Mitochondrial diseases in children, a puzzle in search of a solution”

Friday 20 September 2019 | Roma, Italy

Auditorium “Valerio Nobili” – Bambino Gesù Children’s Research Hospital 9am. Learn more: Mitocon

 

Theatre show “Piume di struzzo il vizietto”

Friday 20 September 2019 | Padua, Italy

Ai Colli Theatre 9pm.  Lean more: Mitocon

 

The Meeting for Adults and Parents of Children with mito

Saturday 21 September 2019 | Nijmegen, The Netherlands

Register here

 

Jordan’s Journey Light up for Mito

Saturday 21 September 2019 | Florida, USA

Join a candlelight vigil for those we lost. At a historic courthouse in downtown Inverness 7:30pm 

 

Mito Information Day

Saturday 21 September 2019 | Adelaide, Australia

Mito Foundation offer members of the mito community the unique opportunity to see presentations from, and speak with, leading researchers and medical professionals working in the field of mito. Register here

 

Conference “Sexuality and disability: beyond stereotypes”

Saturday 21 September 2019 | Molfetta, Italy

Organised by Mitocon Onlus, disucussion about the stereotypes and taboos concerning the sphere of sexuality for people with disabilities. At Auditorium Regina Pacis. Learn more : Mitocon

 

 

– See you in 2020 !! –

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